Hello dear blog,
John had his last full Tuesday at Marie Curie yesterday. He enjoyed it ,saw the doctor, who gave him a lot of encouragement,and reminded him he will always be their patient.
He can choose to go from 12-3 on Tuesdays now, to Daffodil group,he will go under his own steam though. That is fine , a taxi each way once a week will be fine. We have the attendance budget now.
We got a carer to take John to Lynda Mac Cartney this morning to have his bloods done, tomorrow he will go to see the oncologist, again with a carer.
We have so many vouchers that we have not used , so we might as well use them up.
I do not like going there, and I don't like the carers coming in in the mornings, I feel so very very tired at the minute, party January, partly stress, partly 18 months living with John in this new situation.
I feel like running away some days, trying to keep cheerful, keep it together, is becoming more of an effort.
I feel quite restricted, I do not have much spontaneity in my life these days.I was amazed at how much I enjoyed the journey to Chester , like getting out of school. Last week of the month so a good bit of work going on for me, which I love, but feel so drained after it.
I am going to take on a pro bono client today, an old client who is in need and has no money.I am happy to do it I have grown very fond of this young woman.
I am enjoying the Last Saturday Event,I love my two counsellors in Chester and my guy here in Liverpool.
I still see two Young folk from time to time, one almost weekly, they have agreed to come when I am here, no strict rules about weekly sessions, so it suits me well enough.
I like my work, it keeps me in the "normal world"
I hope I have got the hotel in London booked up , they have sent me two reservation numbers, one with one room one adult ,the other with two rooms, but still just one adult. I think when we get there it will all be ok, but they do not have much English on reception, and the on line paperwork, shows this up. This has been a very tiring occupation, getting this done, who knew booking a hotel in London would be so stressful
I am looking forward to the 8th though, DV when we all set off , everything will fall into place and we will have a memorable 24 hours.
John might go to London that week, we wait to see what the oncologist has to say tomorrow.
I was awake for a few hours in the night and listened to the State of the Union speech by Barack Obama, I thought it was wonderful quite inspirational, but what do I know, the political commentator thought he was a bit jaded.it has not been and easy Presidency for him.
So I am here and here I will have to stay for now, and I will make the bast of it, what else is there to do? When life hands you lemons, make lemonade.
All shall be well
and all shall be well
and all manner of things shall be well.
and so it is !
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